MarWol
Community Member
This lazy panda forgot to write something about itself.
MarWol · upvoted 3 items
over 2 years ago
If you put a person on a pedestal, they'll have no choice but to look down on you
MarWol · commented on a post
almost 3 years ago
I'm reading this while lying next to my sleeping, beautiful little son, who has a genetic syndrome and will always need care for the rest of his life. The plan was to have more children, but I feel so much anxiety after reading this post and some comments. It's so hard to decide what's right.
MarWol · commented on 12 posts
over 3 years ago
Yup, happened to us. Perfect pregnancy, uncomplicated birth, rocky couple of months and a diagnosis that means care for life. But I can honestly say that we are happy and even though it's a tough thing to go through as a couple, I do see the possibility that we'll make it through. And our son is as happy as can be, which is the most important part.
He actually did catch the kindness in his father's face quite well.
MarWol · upvoted 24 items
over 3 years ago
When it comes to rocky marriages with a severely disabled child I feel for the child the most. But I also feel for the parents, too. Parents are not experts on caring for someone disabled, nor about the disability. They're learning along the way. Although there are supports and programs for the disabled child, there is very little, to no support for the parents to be able to talk about what they're feeling, how they're getting along. I know there's a few support groups, but they're often niched and localized.
Takotsubo cardiomyopathy