Kam

I Illustrate What Life With Chronic Illness Is Like While I Am Still Able To Draw

Thank you!

I Illustrate What Life With Chronic Illness Is Like While I Am Still Able To Draw

cool art for such a sad state

I Illustrate What Life With Chronic Illness Is Like While I Am Still Able To Draw

this definitely needs more points! i can relate to some of these symptoms and would not be surprised if i end up very weak also

I Document The Progression Of My Rare Disease In Heartbreaking Illustrations

Thank you for your wonderful suggestion. I've actually been in contact with HIBM patients since 2007 and was among the first 3 to be a public advocate for more awareness for our rare condition. I started the development of more patients coming out and sharing their stories and even flew to other countries to help other patients start their own patient advocate groups for our condition. All my doctors told me I would never meet one and I've met over 100 and active role in growing patient advocacy. But you're right, community helps :).

I Document The Progression Of My Rare Disease In Heartbreaking Illustrations

Pam, your images are beautiful and tell your story perfectly, your words too. Congratulations on being able to express yourself. I hope you don't mind but I am sharing a quote of your words as they mirror my own thoughts and actions 'Waves of life inevitably grab us, it is how we sail through the turbulence that matters.'

I Document The Progression Of My Rare Disease In Heartbreaking Illustrations

LOVE YOUR WORK!!! <3